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The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to live full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality, specialized care.

  • Founded in 1955, the Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The Foundation was started by parents desperate to save their children’s lives. Their relentless and impassioned determination to prolong life has resulted in tremendous strides over the past 60 years in accelerating innovative research and drug development, as well as advancing care and advocacy. Virtually every approved cystic fibrosis drug therapy available now was made possible because of the Foundation and its supporters. Still, we believe no one should have to die at a young age. We will not rest until we have a cure for all people living with CF.

  • Cystic fibrosis is a rare, genetic, life-shortening disease that affects every organ in the body and makes breathing difficult. Some people with the disease say it’s like breathing through a narrow straw. In people with CF, a defective gene causes a thick buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria, leading to life-threatening lung infections. Sixty years ago, most children did not live long enough to attend elementary school, but thanks to Foundation-based research and care, the median survival age of people with CF is now about 56.

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Kidz1stFund was created for one reason and one reason only—to raise funds and awareness toward the goal of finding a cure for Fanconi anemia. Each day, the money we’ve raised is already helping experts to discover new treatments, procedures and information related to this rare disease. And each day, that improves the lives and chances for Ethan and all the children like him.

  • Fanconi anemia (FA) is a rare genetic disease that children are born with. It leads to bone marrow failure and can cause serious health challenges, including birth defects, organ complications, and a significantly increased risk of cancer.

    For many patients, a bone marrow transplant is the only life-saving treatment. While survival rates have improved, people with FA still face shortened life expectancy and ongoing medical complications.

  • Kidz1stFund was created to raise funds and awareness to help find a cure for Fanconi anemia. The organization supports research, treatment advancements, and education focused on improving outcomes for children and families affected by FA.

    To date, Kidz1stFund has raised more than $8.5 million to support research and programs such as the Fanconi Anemia Comprehensive Care Program at the University of Minnesota, one of the leading treatment centers in the country.

WE WILL END FA: FOR ETHAN. FOR OTHERS. FOREVER.
FANCONI ANEMIA: A RARE DISEASE WITH REAL IMPACT.

Please join us in our missioner by donating today, registering with the National Bone Marrow Registry and proudly telling the world, I FIGHT FANCONI!

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